Finding Your Village: Tips for Joining FASD Support Groups

Jan 10

Written By Foothills Fetal Alcohol Society

Living with or caring for someone with Fetal Alcohol Spectrum Disorder (FASD) can be both rewarding and challenging. Having a community of people who truly understand your journey can make all the difference. That’s where FASD support groups come in. Whether local or online, these groups offer a safe space to share experiences, gain insights, and feel less alone.

If you’re looking to connect with others navigating life with FASD, here are some tips to help you find the right support group for you. And if you’re in the rural areas surrounding Calgary, we may have a group for you to join—keep reading to learn more!

1. Start with Local Organizations

Many communities have organizations or agencies dedicated to FASD support and awareness. These organizations often host in-person support groups, workshops, or events. To find them:

Search online for FASD resources in your city or region.
Check with local health clinics, hospitals, or social services.
Reach out to schools or special education programs—they may have connections to FASD resources.

2. Leverage National and Regional Networks

National and regional FASD advocacy groups often maintain directories of support groups. Examples include:

CanFASD of Canada - https://canfasd.ca
FASD United in the U.S. - https://fasdunited.org
National Organisation for FASD in the UK - https://nationalfasd.org.uk

3. Explore Online Communities

For many, online support groups provide flexibility and accessibility. Virtual spaces allow you to connect with others anytime, anywhere. Consider:

Facebook Groups: Many FASD-specific groups exist, ranging from general support to niche interests (e.g., parenting strategies, advocacy, or education).
Reddit Communities: Subreddits like r/FASD are great for sharing experiences and asking questions.
Specialized Platforms: Websites like MyFASD or specific parenting forums often have dedicated discussion boards.

When joining an online group, take time to read the guidelines and observe conversations to ensure the group’s tone aligns with your needs.

4. Ask for Recommendations

If you’re connected with other caregivers, educators, or professionals in the FASD community, ask them for recommendations. Word-of-mouth referrals can lead you to trusted and welcoming groups.

5. Consider Professional-Led Groups

Some support groups are facilitated by professionals, such as therapists or social workers, and focus on specific goals like coping strategies or mental health. These groups might require a referral or registration but can provide valuable insights and structured guidance.

6. Look for Hybrid Options

As the world becomes increasingly digital, some groups offer hybrid formats—combining in-person and online meetings. This can be a great option if you want the flexibility of virtual connections alongside occasional face-to-face interactions.

7. Check the Fit

Not every group will feel like the right fit, and that’s okay. Pay attention to how you feel after attending a meeting or engaging online. Do you feel supported and understood? If not, don’t hesitate to explore other options.

8. Be Open to Giving and Receiving

Support groups thrive on mutual understanding and exchange. While it’s wonderful to receive advice and encouragement, sharing your own experiences can be equally valuable to others.

A Special Note for Rural Areas Around Calgary

If you live in the rural areas surrounding Calgary, we may have a group for you to join! We understand the unique challenges of accessing resources in rural communities and are here to help. We also have a Facebook page where you can connect with other caregivers, share your experiences, and find support. Join us online and discover a community that’s ready to walk this journey with you.

The Power of Community

FASD support groups are more than just a place to talk—they’re a lifeline for many families. Through these connections, you can gain practical advice, celebrate milestones, and find comfort during tough times. Most importantly, you’ll be reminded that you’re not alone.

Have you found a support group that’s made a difference in your journey? Share your experience in the comments—your story might inspire someone else to find their village. We are here.